Thursday, 10 March 2022

Late Diagnosis Anger/Trauma/Grief

I was talking with my wonderful, awesome daughter in law who has late diagnosed ADHD very recently at 33, about how angry I’ve been feeling & she told me that late diagnosis trauma is an actual recognised thing in mental health….. it’s ‘what could have been pain’….. yep that’s part of what’s been going on definitely, I keep getting really angry that I can’t have things happen that a more well person, someone who’s been okish, ok enough could have had like a career, relationships, friendships, achievements, I dunno, travel, err there’s lots of things isn’t there. I’ve literally lived in survival mode my entire adult life not knowing what the fuck was hitting me all the time, I didn’t know what was happening or why. 

So why am I getting angry now? Well, I thing my brain reconstruction process is in pretty good shape right now, best it’s been in a very long time, possibly ever which is great & a cause for great joy & for feeling very very proud & pleased that I’ve achieved that against such greats odds…… & I do think that feeling is there, it’s just partially obscured by this anger & trauma & loss about how much I missed out. Just bare with me, I’ve got to process it my way, I know people want to just say focus on the positive, the present, the future, don’t look back in anger or whatever but I’m raking it over to try to make sense & release some of it, Its just my process I guess. Certainly just a year ago I didn’t have the brain capacity to process anything other than am I having a good day & how to try to stay ok or a bad day & how best to triage that. 

I’ve been locked in my room on my own feeling crazy for all these different parts of my life, so many, long bipolar lows mainly but also for the 8 years after the Psychiatrist misdiagnosed/failed to diagnose me in 2008 I now know I was massively brain damaged at that time & at that actual appointment, which is why I couldn’t explain what I was experiencing to him. His misdiagnosis essentially put me & kept me in the house not knowing why my brain was broken or even that it was for nearly another decade of confusion. I had already given up alcohol, as i realised I couldn’t be trusted with it but that was my social anxiety buffer removed with nothing to replace it. 

It was just so baffling, probably since that first brain damage of the first Bipolar high & crash at 18. No, damn it……I felt brain damaged much earlier, I had over the top rage attacks as a child I don’t know when that started but it was still happening at 13/14 when I quit eating for 6 months. And as I went amongst it all as a teen & got into alcohol these merged into dangerous rage triggered by jealousy over boys, even physically attacking other girls - impulse control had left the building already…. this is how I left school at 17 with next to no qualifications. I hadn’t been able to concentrate on schoolwork for years, since about 12 is how I remember it. (there’s a real ADHD vibe about this period)

Bipolar highs definitely cause brain damage in & of themselves & the crash to low is completely surreal & feels like my nervous system completely disintegrating. Short term memory is decimated, as well as decision making & impulse control etc. I’ve heard PTSD be describe like Alzheimer’s & both my kids will verify how badly like Alzheimer’s I was post crash 2016 & now looking back I can start to see & appreciate the other times that I was left with this Alzheimer’s brain & the slow crawl back or else the resorting to extreme behaviour to get some respite & relief from the feeling of being disarranged cognitively as well as emotionally dysregulated by minutiae. 

Currently listing to Binaural Beats Deep Theta & it’s simply the most healing thing I’ve done in a long time for my nervous system ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ Someone reminded me about them recently๐Ÿ™ I used Binaural Beats for years between 2006-2015 but I invariably had no working headphones so I just had it on in the room which I think is not so good - that’s how poor I was financially before the disability benefits i got 2017 post diagnosis, I could not afford headphones. I was 50 & I couldn’t afford headphones, what can I say. 

No comments:

Post a Comment